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The 2006 Annual Fibromyalgia and Fatigue Survey

1. How old are you? Less than 15 years of age 2 0% 16 years to 21 years 16 1% 22 years to 26 years 46 2% 27 years to 33 years 110 5% 34 years to 40 years 249 12% 41 years to 47 years 437 21% 48 years to 55 years 664 32% 56 years to 65 years 461 22% 65 years old + 88 4%   2073 100%

2. Are you male or female? Male 84 4% Female 1987 96% Prefer not to answer 2 0%   2073 100%

3. How long have you been suffering from CFIDS or Fibromyalgia symptoms? 0 to 1 year 45 2% 1 to 3 years 238 11% 3 to 5 years 359 17% 5 to 10 years 635 31% 11+ years 796 38%   2073 100%

4. What is your chief complaint regarding how FMS/CFIDS affects your health? Lack of Sleep 73 4% Constant Pain 769 37% Unrelenting Fatigue 412 20% Inability to Function Normally 438 21% Inability to be Productive 106 5% Added Stress 43 2% Other, Please Specify 232 11%   2073 100%

5. Did you have a precipitating event, illness or trauma may have contributed to this illness? Yes 1292 62% No 781 38%   2073 100%

6. How would you describe your spouse or family's support level and understanding of the nature of Fibromyalgia and/or CFIDS and how it impacts your lifestyle? Poor 425 21% Fair 682 33% Good 604 29% Excellent 362 17%   2073 100%

7. What type of questions have you been afraid or embarrassed to ask concerning these illnesses? (We are not collecting any person specific data with this survey so feel free to answer) 1032 Responses

8. What type of physician(s) have you seen in the past for your FM or CFIDs? MD - Family Practice 1486 72% MD - Internal Medicine 866 42% MD - Rheumatologist 1317 64% MD - Endocrinologist 297 14% MD - Physiatrist 384 19% MD- Speciality Fibomyalgia or Fatigue Practice 367 18% MD - Other 260 13% DO - Family Practice 327 16% DO - Rheumatologist 159 8% DO - Other 67 3% DC - Chiropractor 804 39% ND - Naturopath 245 12% RPh - Pharmacist 192 9% Other, Please Specify 615 30%

9. What type of physician(s) are you seeing now? MD - Family Practice 1063 51% MD - Internal Medicine 455 22% MD - Rheumatologist 509 25% MD - Endocrinologist 115 6% MD - Physiatrist 139 7% MD - Speciality Fibromyalgia or Fatigue Practice 249 12% MD - Other 122 6% DO - Family Practice 151 7% DO - Rheumatologist 45 2% DO - Other 25 1% DC - Chiropractor 312 15% ND - Naturopath 62 3% Other 46 2% Other, Please Specify 512 25%

10. How would you rate the current treatment you are receiving from your health care provider for your FMS/CFIDS condition? Poor 538 26% Fair 804 39% Good 541 26% Excellent 190 9%   2073 100%

11. Does the physician that is currently treating your condition have ... Specialized training with regard to FMS/CFIDS 444 22% A large patient base with similar/same conditions 563 28% Limited knowledge but still trying their best to assist you 942 47% Other, Please Specify 408 20%

12. How many medications are you currently on or have been prescribed to control your various symptoms? None 190 9% 1 to 2 prescriptions 552 27% 3 to 5 prescriptions 690 33% 6 to 8 prescriptions 279 13% 8 + prescriptions 362 17%   2073 100%

13. What medications are you currently on or have been prescribed to assist you with getting restful sleep? Not Applicable 274 13% Diazepam (Valium) 105 5% Lorazepam (Ativan) 169 8% Temazopam (Restoril) 111 5% Clonazepam (Klonopin) 291 14% Alprazolam (Xanax) 271 13% Diphenhydramine (Benadryl) 178 9% Zolpidem (Ambien) 461 22% Zeleplon (Sonata) 75 4% Trazodone (Desyrel) 298 14% Mirtazapine (Remeron) 56 3% Amitriptyline (Elivil) 478 23% Doxepin (Sinequan) 73 4% Other, Please Specify 951 46%

14. How is your current treatment being paid for? No Insurance - All Cash or Credit Card Payment 265 13% Some Insurance - Remainder Cash or Credit Card Payment 555 27% Mostly Insurance - Limited Out of Pocket Expense 832 40% All Insurance Payment 207 10% Other, Please Specify 214 10%   2073 100%

15. What medications are you currently on or have been prescribed to control your pain symptoms? Not Applicable 119 6% Tramadol (Ultram, Ultrcet) 620 30% Hydrocodone (Vicodin, Norco, Lortab) 584 28% Cyclobenzaprine (Flexeril) 641 31% Metaxalone (Skelaxin) 219 11% Carusoprodol (Soma) 197 10% Celecoxib (Celebrex) 417 20% Rofecoxib (Vioxx) 303 15% Valdecoxib (Bextra) 194 9% Ibuprofen (Advil) 638 31% Naproxen (Naprosyn) 431 21% Citalopram (Celexa) 164 8% Fluxetine (Prozac, Sarafem) 245 12% Paroxetine (Paxil) 211 10% Sertraline (Zoloft) 303 15% Venlafaxin (Effexor) 307 15% Gabapentin (Neurotin) 383 18% Acetaminophen (Tylenol) 568 27% Other, Please Specify 904 44%

16. In addition to prescription medications, what other treatment(s) are you receiving? (Please select all that apply) IV Therapy 105 5% Trigger Point Injections 257 12% Ozone Therapy 2 0% Massage Therapy 594 29% Physical Therapy 328 16% Nutrition Therapy (Supplements) 588 28% Hyperbaric Oxygen Therapy 3 0% Other, Please Specify 1115 54%