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The 2006 Annual Fibromyalgia and Fatigue Survey

    
1. How old are you?

Less than 15 years of age


2

0%
16 years to 21 years
16 1%
22 years to 26 years
46 2%
27 years to 33 years
110 5%
34 years to 40 years
249 12%
41 years to 47 years
437 21%
48 years to 55 years
664 32%
56 years to 65 years
461 22%
65 years old +
88 4%
  2073 100%

    
2. Are you male or female?

Male


84

4%
Female
1987 96%
Prefer not to answer
2 0%
  2073 100%

    
3. How long have you been suffering from CFIDS or Fibromyalgia symptoms?

0 to 1 year


45

2%
1 to 3 years
238 11%
3 to 5 years
359 17%
5 to 10 years
635 31%
11+ years
796 38%
  2073 100%

    
4. What is your chief complaint regarding how FMS/CFIDS affects your health?

Lack of Sleep


73

4%
Constant Pain
769 37%
Unrelenting Fatigue
412 20%
Inability to Function Normally
438 21%
Inability to be Productive
106 5%
Added Stress
43 2%
Other, Please Specify
232 11%
  2073 100%

    
5. Did you have a precipitating event, illness or trauma may have contributed to this illness?

Yes


1292

62%
No
781 38%
  2073 100%

    
6. How would you describe your spouse or family's support level and understanding of the nature of Fibromyalgia and/or CFIDS and how it impacts your lifestyle?

Poor


425

21%
Fair
682 33%
Good
604 29%
Excellent
362 17%
  2073 100%

    
7. What type of questions have you been afraid or embarrassed to ask concerning these illnesses? (We are not collecting any person specific data with this survey so feel free to answer)
1032 Responses

    
8. What type of physician(s) have you seen in the past for your FM or CFIDs?

MD - Family Practice


1486

72%
MD - Internal Medicine
866 42%
MD - Rheumatologist
1317 64%
MD - Endocrinologist
297 14%
MD - Physiatrist
384 19%
MD- Speciality Fibomyalgia or Fatigue Practice
367 18%
MD - Other
260 13%
DO - Family Practice
327 16%
DO - Rheumatologist
159 8%
DO - Other
67 3%
DC - Chiropractor
804 39%
ND - Naturopath
245 12%
RPh - Pharmacist
192 9%
Other, Please Specify
615 30%

    
9. What type of physician(s) are you seeing now?

MD - Family Practice


1063

51%
MD - Internal Medicine
455 22%
MD - Rheumatologist
509 25%
MD - Endocrinologist
115 6%
MD - Physiatrist
139 7%
MD - Speciality Fibromyalgia or Fatigue Practice
249 12%
MD - Other
122 6%
DO - Family Practice
151 7%
DO - Rheumatologist
45 2%
DO - Other
25 1%
DC - Chiropractor
312 15%
ND - Naturopath
62 3%
Other
46 2%
Other, Please Specify
512 25%

    
10. How would you rate the current treatment you are receiving from your health care provider for your FMS/CFIDS condition?

Poor


538

26%
Fair
804 39%
Good
541 26%
Excellent
190 9%
  2073 100%

    
11. Does the physician that is currently treating your condition have ...

Specialized training with regard to FMS/CFIDS


444

22%
A large patient base with similar/same conditions
563 28%
Limited knowledge but still trying their best to assist you
942 47%
Other, Please Specify
408 20%

    
12. How many medications are you currently on or have been prescribed to control your various symptoms?

None


190

9%
1 to 2 prescriptions
552 27%
3 to 5 prescriptions
690 33%
6 to 8 prescriptions
279 13%
8 + prescriptions
362 17%
  2073 100%

    
13. What medications are you currently on or have been prescribed to assist you with getting restful sleep?

Not Applicable


274

13%
Diazepam (Valium)
105 5%
Lorazepam (Ativan)
169 8%
Temazopam (Restoril)
111 5%
Clonazepam (Klonopin)
291 14%
Alprazolam (Xanax)
271 13%
Diphenhydramine (Benadryl)
178 9%
Zolpidem (Ambien)
461 22%
Zeleplon (Sonata)
75 4%
Trazodone (Desyrel)
298 14%
Mirtazapine (Remeron)
56 3%
Amitriptyline (Elivil)
478 23%
Doxepin (Sinequan)
73 4%
Other, Please Specify
951 46%

    
14. How is your current treatment being paid for?

No Insurance - All Cash or Credit Card Payment


265

13%
Some Insurance - Remainder Cash or Credit Card Payment
555 27%
Mostly Insurance - Limited Out of Pocket Expense
832 40%
All Insurance Payment
207 10%
Other, Please Specify
214 10%
  2073 100%

    
15. What medications are you currently on or have been prescribed to control your pain symptoms?

Not Applicable


119

6%
Tramadol (Ultram, Ultrcet)
620 30%
Hydrocodone (Vicodin, Norco, Lortab)
584 28%
Cyclobenzaprine (Flexeril)
641 31%
Metaxalone (Skelaxin)
219 11%
Carusoprodol (Soma)
197 10%
Celecoxib (Celebrex)
417 20%
Rofecoxib (Vioxx)
303 15%
Valdecoxib (Bextra)
194 9%
Ibuprofen (Advil)
638 31%
Naproxen (Naprosyn)
431 21%
Citalopram (Celexa)
164 8%
Fluxetine (Prozac, Sarafem)
245 12%
Paroxetine (Paxil)
211 10%
Sertraline (Zoloft)
303 15%
Venlafaxin (Effexor)
307 15%
Gabapentin (Neurotin)
383 18%
Acetaminophen (Tylenol)
568 27%
Other, Please Specify
904 44%

    
16. In addition to prescription medications, what other treatment(s) are you receiving? (Please select all that apply)

IV Therapy


105

5%
Trigger Point Injections
257 12%
Ozone Therapy
2 0%
Massage Therapy
594 29%
Physical Therapy
328 16%
Nutrition Therapy (Supplements)
588 28%
Hyperbaric Oxygen Therapy
3 0%
Other, Please Specify
1115 54%