This is great that you’re being helped! I have had fibro since last August and still have adrenal fatigue and major sensitivity to fluorescent lights and Electromagnetic Radiation, making it impossible to work outside of the home.

Regarding your:
“Five viruses looping, and an alarming low natural killer cell provided an ideal nesting place for the fibro.”

What Tests did you have to find these viruses (and T-cell levels)?

“Dr. G explained to us that fibromyalgia manifests itself as a musclosketal issue but is actually a neurohormonal issue. ”

I believe this- as I have not had a period since August and I have the major light sensitivity. (Could also be caused by lyme I guess)

Thanks so much for your time,
L

I am glad to read that you are doing so much better. As I read your updates, I realized that my sleeping pattern is very similar to yours. Can you share with me what you are doing to assist you with better and more restful sleep?

Many thanks,

Lisa

I now have the book from Fatigued to Fantastic by Jacob Teitelbaum, MD and recommend this book to any doctor who has patients or person who has FMS/CFS and would like some more knowledge. In deciding to start at the Center, I may have done things backwards-but I find myself here now. I researched and found this site, you, the center, and then Doctor Teitelbaum’s books.

I have lived….in the same town for around 25 years, and I have had the same primary care doctor for 22 years. I may be stirring the pot around here, but jut a little. This town has a very big and famous clinic that is great on several things yet conservative and behind on FMS/CFIDS.

I found an article published by this clinic while on Daily Strengths. It was printed only four days after I faxed my doctor a letter that started off as a personal e-mail to a friend, and I chose to send it to several other people. This letter is of my frustration with my Fibromylagia and the medical community. Interesting.

I hurt my neck 8 years ago and went through all the normal procedures. When all the test came back within the “norm” I was diagnosed with FMS/CFS. I also have degenerative disk disease in 3 other places in my back, and I have 2 disks in my neck that push into my spinal canal, but this clinic won’t do anything for me because everything is within the “norm”.

I have learned to live with the pain, but the quality of my life seems to be slipping by. Who wouldn’t need anti-depressants if they have had a headache with various levels for the last 8 years? I think I have neck/back issues too, but they blame my Fibro.

I would suggest or bring in articles from the FMS network to several different doctors. They would turn my suggestions down…Eight years later I was talking with a Neurologist about neurotransmitters being more active in FMS patients spines, but he cut me off to explain that this has never been proven. I realized then I was still going around in circles. In a big clinic you have several different specialists who are never on the same page about FMS and this is very frustrating for me and for several others.

I found myself feeling my worst taking about 17 different meds at different times for all of my issues. I feel like I have a head cold quite often with sore throats which is only a viral thing passing. My muscles have been so tired for so long now it seems to be work to take care of myself right now.

I searched the net for information, which I still only half understand-“yet find very interesting” and seem to be my passion right now.

When I went to the Fibromylagia and Fatigue Center in Seattle, I felt like this was the first time I had a doctor that I could relate to all of my symptoms, big or small, and she had an idea of what I was talking about; instead of sending me off to a specialist who had no clue about FMS..

I liked the Fibromylagia and Fatigue Centers for their holistic approach. I seem to have several issues and adressing them all will be a challenge but I am game. I like the idea that it is a center dedicated to “one” major cause FMS/CFIDS. I understand there is no cure, but I want to feel good enough to live again-I haven’t done that since I hurt my neck really, and I want to feel good enough to work again-which I haven’t done since December.

Say National Fibromylagia Day is May 12th right. I was going to be in Seattle, but I changed my date because I want to be home. First of all because of Mothers Day, but also I wanted to be around home on the 12th. I hope I have enough energy to write an article, or put up flyers at the college or…help… what is SHINE…or is this to much for me to tackle alone right now and I should go to a seminar myself in a neighboring big city? I really am all alone here is this big city—no support from doctors, friends, family, etc. I know awareness is the key, but I usually am a strong person but just not right now.

My next appointment at the center is in May 5th. I look forward to my blood work and receiving more treatments.

I hope this brings you comfort.
Take Care